Component 6; Unit 8: Consumer Health Informatics
Description:
Definitions of health communication, e-Health, consumer health informatics, and interactive health communication, identifies how the Internet has impacted consumer health informatics, explains how current and emerging technologies may affect consumer health informatics, and introduces the role of genomics in consumer health informatics. Definitions of personal health records or PHRs, describes the role of PHRs and their implications within health care, and discusses the challenges of consumerism in health information systems.
Objectives:
- Explain how current and emerging technologies have impacted and may continue to affect consumer health informatics
- Describe the role of genomics in consumer health informatics
- Describe the emergence of personal health records and their implications for patients, health care providers and health systems
- Discuss how consumerism influences the ongoing development and use of health information systems
Component 6; Unit 8; Lecture 8a comp6_unit8a_lecture_slides
Introduction to Consumer Health Informatics: 1) Definitions; 2) Impact of the internet on consumer health informatics; 3) Current and emerging technologies in consumer health informatics; 4) Genomics in consumer health informatics
Component 6; Unit 8; Lecture 8b comp6_unit8b_lecture_slides
Personal Health Records and Consumerism: 1) Definitions; 2) Role of PHRs; 3) Challenges of consumerism in health information systems
Suggested Readings
AHIMA e-HIM Personal Health Record Work Group. (2005, July-August). The role of the personal health record in the EHR. Journal of AHIMA Retrieved from http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_048517.hcsp?dDocName=bok1_048517
AHRQ. (2009). Internet access for health information and advice. Retrieved from http://www.cahps.ahrq.gov/qiguide/content/interventions/InternetAccess.aspx
Centers for Disease Control and Prevention. (2010). Genomics and health. Retrieved from http://www.cdc.gov/genomics/public/index.htm
Centers for Disease Control and Prevention. (2011, May). Social media at CDC. Retrieved from http://www.cdc.gov/SocialMedia/Tools/
Fahrenholz, C. G., & Buck, S. L. (2007). PHRs and physician practices. Journal of
Gibbons, M.C., Wilson, R.F., Samal, L, Lehmann, C.U., Dickersin, K., Lehmann, H.P., Aboumatar, H., Finkelstein, J., Shelton. E., Sharma, R., & Bass, E.B. (2009, October). Impact of consumer health informatics applications. Evidence Report/Technology Assessment No. 188. (Prepared by Johns Hopkins University Evidence-based Practice Center under contract No. HHSA 290-2007-10061-I). AHRQ Publication No. 09(10)-E019. Rockville, MD. Agency for Healthcare Research and Quality. Retrieved from http://www.ncbi.nlm.nih.gov/books/NBK32638/pdf/TOC.pdf
Health Level Seven International. (2008). Product PHR FM. Retrieved from http://wiki.hl7.org/index.php?title=Product_PHR_FM
Health Resources and Services Administration (HRSA). (2003, October). Telemedicine reimbursement report. (Prepared by the Center for Telemedicine Law under contract No.02-HAB-A215304). Retrieved from http://www.hrsa.gov/ruralhealth/about/telehealth/reimburse.pdf
Markle Foundation. (2008, June). Connecting consumers: Common framework for networked personal health information. Retrieved from http://www.markle.org/publications/402-connecting-health-common-framework-networked-personal-health-information
Mead N., & Bower P. (2000). Patient-centredness: a conceptual framework and review of the empirical literature. Social Science & Medicine. Social Science & Medicine, 51. Retrieved from http://med.over.net/javne_datoteke/novice/datoteke/312-reading25cPatientccentrednesscacconceptualcframework1.pdf
National Human Genome Research Institute. (2010). Genetic information nondiscrimination act of 2008. Retrieved from http://www.genome.gov/10002328
Office of Disease Prevention and Health Promotion. (2006, June). Expanding the reach and impact of consumer e-Health tools. Retrieved from http://www.health.gov/communication/ehealth/ehealthTools/default.htm
Ratzan, S.C. (Ed.). (1994). Health communication, challenges for the 21st century. Special issue. American Behavioral Scientist 38(2), 202-207.
U.S. Department of Health and Human Services. (2006, June). Expanding the reach and impact of consumer e-Health tools. Retrieved from http://www.health.gov/communication/ehealth/ehealthtools/pdf/ehealthreport.pdf
U.S. Department of Health and Human Services. (2012). Genomics. Retrieved from http://www.healthypeople.gov/2020/topicsobjectives2020/overview.aspx?topicid=15
Dimick, C. (2010, February). Empowered patient: Preparing for a new patient interaction. Journal of AHIMA 81(2), 26-31.
Kaplan, A. M. & Haenlein, M. (2010). Users of the world unite! The challenges and opportunities of social media. Business Horizons 53(1), 59-68. “Connecting for Health Common Framework for Networked Personal Health Information: Overview and Principles” published by Markle Foundation Connecting for Health, www.connectingforhealth.org, June 2008.
Markle Foundation. (2004, July). Connecting Americans to their healthcare: Final report. Retrieved from http://www.markle.org/publications/1250-connecting-americans-their-health-care
Mead N., & Bower P. (2000). Patient-centredness: a conceptual framework and review of the empirical literature. Social Science & Medicine. Retrieved from http://med.over.net/javne_datoteke/novice/datoteke/312-reading25cPatientccentrednesscacconceptualcframework1.pdf
Robinson, T.N.; Patrick, K.; Eng, T.R.; & Gustafson, D, for the Science Panel on Interactive Communication and Health. (1998, October). An evidence-based approach to interactive health communication: A challenge to medicine in the Information Age. Journal of the American Medical Association, 280(14), 1264-1269.
Valdez R., Yoon, P.W., Qureshi, N., Green, R. F., & Khoury, M. J. (2010, April). Family history in public health practice: A genomic tool for disease prevention and health promotion. Annual Review of Public Health 31, 69-87.